PWS Association

Prader‐Willi Syndrome Association | USA was established in 1975 to unite parents, professionals, and other interested citizens to enhance the quality of life for those affected by Prader‐Willi syndrome (PWS). The organization plays a crucial role in the PWS community by providing a platform for shared experiences, advancing research, promoting education, advocating for patient rights, and offering comprehensive support to individuals with the syndrome and their families.

With chapters across most states, PWSA | USA stands as the only national PWS supporith Prader-Willi syndrome t organization dedicated exclusively to assisting individuals w and their families at every stage of their journey.

Services and Programs

Support Services:

Emotional and informational support for families and individuals.

Assistance with accessing healthcare and educational resources.

Crisis intervention and management.